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Nathan's Battle Details a boy's fight against Batten's Disease and dedication to promote awareness to help find a cure. http://www.nathansbattle.com
The Luke and Rachel Batten Foundation Created to engage in education and medical research toward diagnosis, treatment and/or cure of Juvenile neuronal ceroid lipofuscinosis (Batten disease) and to assist persons with the disease. http://lrbf.org
The Natey Foundation Information for parents and families of Battens victims. http://www.nateyfoundation.org/