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Organizations
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Stevens Johnson Syndrome Foundation
provides medical communities and the public with information and support.
http://www.stevensjohnsonsyndrome.net/
The American Hyperacusis Association
Dedicated to increasing public and professional awareness of hyperacusis and its diagnosis, evaluation, and management.
http://www.americanhyperacusis.com/
The Melungeon Health Education and Support Network
Dedicated to the health of Melungeon descendants who have one or more of the five major Mediterranean illnesses, including Behçet's Syndrome and Sarcoidosis.
http://www.melungeonhealth.org/
The National Pancreas Foundatio
Committed to advancing education and research related to diseases of the pancreas, including pancreatitis and pancreatic cancer.
http://www.pancreasfoundation.org/
Transverse Myelitis Association
not-for-profit organization providing support to families affected by TM.
http://www.myelitis.org/
Wobblers Anonymouse
support group for those damaged by gentamicin. Symptoms include oscillopsia and loss of balance.
http://www.wobblers.com/
Worldwide Society of Wolfram Syndrome Families
support group for a rare disease.
http://www.wolframsyndrome.org/

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